Contact Us
This website is in its infancy. If you find something lacking, or something we are doing exceptionally well, please send an email. It is your feedback that will make AcromegalyCommunity.com the most useful tool possible for all acromegalics in every stage of the illness.
Thank you for your interest in our group.
If you are interested in donating:
Dear Friends:
I am very excited to present to you the internet's first and only patient-centered website that focuses solely on Acromegaly.
The purpose of this website is to serve acromegalics at every point of their journey:
- Newly diagnosed patients are encouraged to make use of the questions page. Our seasoned veterans may have something to add, so feel free to look and make suggestions.
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- In addition to questions for new patients, information is available on treatment options and what they entail, including surgery, radiation, and prescription drugs with information on potential side effects and prices.
- If you have questions or feel that you have information to share, you are encouraged to post your questions and comments on the message board where people from around the world interact on the subject of Acromegaly. Topics can include medication, insurance issues, emotions, or any other questions or ideas that cross your mind. This message board is an international virtual support group available whenever you need a sympathetic ear or want to share with others in similar circumstances.
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- In addition to patients, I encourage medical professionals to share your expertise with our group. Doctors, nurses, phlebotomists, students, or anyone else in the medical community is encouraged to share your knowledge about the disease, or ask questions of each other or of the expert patients living with Acro.
- Family and friends impacted by Acromegaly are encouraged to participate on the message board. As an acromegalic, I appreciate how tough it was for my family to sit on the sidelines as we were all dealing with the same issue, but from vastly different perspectives. Your information and experiences can be valuable to people just learning to deal with the disease and the emotional hurdles involved.
- All you need to do to participate on the message board is register. Let us know who you are, where you are from, and why you joined (are you a patient, medical professional, or friend/family). If you want to include more information, it is welcomed, but certainly not necessary.
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- If you do not wish to contribute to the message board, feel free to read anything you like, without registration.
- There is a news section that is maintained with all the news available related to Acromegaly including upcoming FDA testing, Acromegaly-related news, and significant people touched by Acromegaly. If there is a news piece missing, please email me a link and I will post it within 48 hours.
If you wish to share your photos for the member photo section, feel free! I will add photos every month or so. Again, there is no obligation to post your photo, but the option is available if you would like.
Because people are at individual points in their journey with the disease, I am committed to making sure AcromegalyCommunity.org helps everybody feel supported along their path. If you feel something is missing, please contact me.
I ask that you make this website one of your favorites on your browser, and share it with the people you know (including your friends, family, endocrinologist, and personal physician). Only by spreading the word about Acromegaly and its effects can we hope to educate and inform the world about our disease; for better and for worse.
We are reminded daily in the news that like many other things, the cost of information is rising. Your support for AcromegalyCommunity.com will help to maintain the tremendous information provided from around the world. Because I have made the commitment to not accept advertising or corporate sponsorship, private donations are greatly appreciated. All net proceeds support research and indigent patients. I do realize the high cost of Acromegaly, and if finances are an issue, I hope that the information and support provided by this site will contribute to better days ahead for you. If you have not made a donation and can, I hope that you would consider one. Every dollar counts. Every single gift is welcome and meaningful.
We are in the process of obtaining IRS clearance to accept tax deductible donations. If you are interested in making a donation, please send an email to 
for further information. Once your donation is received, we will send a letter of acknowledgement.
Sincerely,
Wayne N. Brown
Founder and Creator of AcromegalyCommunity.com
Please use the form below to contact us via email.
